The musings and rants of Julie Marie Miller, Special Needs Specialist, Parenting Expert & Mental Health Caregiver
  • Julie Marie Miller

National Rare Disease Day

Today is, well would be, Rare Disease Day which coincides with (the nonexistent but every four years) February 29th which is also the anniversary of the day I was cured of mine (I had Cushing's Disease); the significance of today being that "national day" is as ironic - possibly serendipitous as Autism Awareness day landing on my birthday.

Exactly 31 years ago I was cured completely of the rare disease with which I suffered for four years.

Those of you who suffer in silence from rare conditions or hidden disabilities with no advocacy groups, no organizations providing funding and no understanding of your condition, know that you're in my thoughts, hopes and prayers daily.

I hear you. I see you.

Julie Marie Mille Parenting Expert Caregiver Support
follow me
  • Special Education Moms: Closed Group
  • Fake it 'til you make it
Just Ask Julie
Mother. Writer. Ally.
knowledge broker

Hold My Beer Foundation pending nonprofit  status so I can help others, too.


© 2019 by Clusterfuck Productions, All Rights Reserved.